Explanation before Adoption: Supporting Informed Consent for Complex Machine Learning and IoT Health Platforms
Rachel Eardley, Emma L. Tonkin, Ewan Soubutts, Amid Ayobi, Gregory J. L. Tourte, Rachael Gooberman-Hill, Ian Craddock, Aisling Ann O'Kane
Abstract
Explaining health technology platforms to non-technical members of the public is an important part of the process of informed consent. Complex technology platforms that deal with safety-critical areas are particularly challenging, often operating within private domains (e.g. health services within the home) and used by individuals with various understandings of hardware, software, and algorithmic design. Through two studies, the first an interview and the second an observational study, we questioned how experts (e.g. those who designed, built, and installed a technology platform) supported provision of informed consent by participants. We identify a wide range of tools, techniques, and adaptations used by experts to explain the complex SPHERE sensor-based home health platform, provide implications for the design of tools to aid explanations, suggest opportunities for interactive explanations, present the range of information needed, and indicate future research possibilities in communicating technology platforms.
CCS Concepts: • Human-centered computing → Human computer interaction (HCI).
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Cited by top-tier papers3
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Builds on3
- Understanding and Improving Security and Privacy in Multi-User Smart Homes: A Design Exploration and In-Home User StudyEric Zeng, Franziska RoesnerUSENIX Security 2019 · 190 citations
- A Case Study Investigating a User-Centred and Expert Informed 'Companion Guide' for a Complex Sensor-based PlatformRachel Eardley, Sue Mackinnon, Emma L. Tonkin, Ewan Soubutts et al.UbiComp 2022 · 13 citations
- Aging in Place Together: The Journey Towards Adoption and Acceptance of Stairlifts in Multi-Resident HomesEwan Soubutts, Amid Ayobi, Rachel Eardley, Kirsten Cater et al.CSCW 2021
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