Personal Health Data Communication: Techniques, Tensions, and Implications for Design from a Clinician Perspective

This paper reports how clinicians explain personal health data to patients and the tensions which arise from this in practice, leading us to describe a set of implications for designing communication aids around personal health data. With the trend towards patient-centered care and shared decision making, it is crucial that patients understand their clinical data and respective implications during medical consultations. So, what strategies do clinicians currently use to ensure this? And how can these inform the development of successful patient communication aids? Through interviewing 19 healthcare professionals, we identify 57 techniques, painting a rich picture of current practices. However, we also note 9 tensions that arise when applying these techniques in reality; such as balancing transparency with disclosing data inappropriate for a patient’s current situation. Based on the techniques and motivated by these tensions, we present a set of considerations to inform the design of technological patient communication aids consistent with current clinical practice.