Assessing MyData Scenarios: Ethics, Concerns, and the Promise

Public controversies around the unethical use of personal data are increasing, spotlighting data ethics as an increasingly important feld of study. MyData is a related emerging vision that emphasizes individuals' control of their personal data. In this paper, we investigate people's perceptions of various data management scenarios by measuring the perceived ethicality and level of felt concern concerning the scenarios. We deployed a set of 96 unique scenarios to an online crowdsourcing platform for assessment and invited a representative sample of the participants to a second-stage questionnaire about the MyData vision and its potential in the feld of healthcare. Our results provide a timely investigation into how topical data-related practices afect the perceived ethicality and the felt concern. The questionnaire analysis reveals great potential in the MyData vision. Through the combined quantitative and qualitative results, we contribute to the feld of data ethics.

• Human-centered computing → Human computer interaction (HCI); • Security and privacy → Human and societal aspects of security and privacy; Social aspects of security and privacy.