What Is Most Important: The Tradeoffs of Structuring Value Documentation in Electronic Health Records
Dylan Thomas Doyle, Jed R. Brubaker
Abstract
Advance Care Planning (ACP) enables patients to articulate the values that guide their end-of-life decisions, thereby improving health outcomes as they near death. However, Electronic Health Record (EHR) systems often fail to consistently support the documentation and transfer of these values across care settings. To investigate how ACP values are encoded, transmitted, and interpreted between hospital-based palliative care teams and hospice professionals, we conducted a narrative network analysis of twelve interviews with clinicians from both domains. Our analysis maps ACP value documentation workflows and reveals technical and organizational barriers – such as incompatible systems, unstructured or non-searchable formats, and mismatched assumptions about roles – that disrupt continuity of care. While more structured EHR fields may enhance usability, most value documentation remains under-structured, unstructured, or omitted, limiting searchability and interoperability. Building on prior CSCW research on healthcare coordination across distributed stakeholders, this study offers design recommendations for EHR systems and organizational practices to better support value documentation in clinical settings.
Ask about this paper
Ask your agent about it.
Lune has read the top-tier papers around this one, so every answer names the papers it rests on.
Related papers
- Navigating Value Elicitation: Insights from Palliative Care ProvidersDylan Thomas Doyle, Colleen Campbell, Adrian Petterson, Jed R. BrubakerCSCW 2025 · 2 citations
- "I Choose to Live, for Life Itself": Understanding Agency of Home-Based Care Patients Through Information Practices and Relational Dynamics in Care NetworksSung-In Kim, Joonyoung Park, Bogoan Kim, Hwajung HongCHI 2026 · 1 citation
- Balancing Efficiency and Empathy: Healthcare Providers' Perspectives on AI-Supported Workflows for Serious Illness Conversations in the Emergency DepartmentMenglin Zhao, Zhuorui Yong, Ruijian Hannah Guan, Kai-Wei Chang et al.CHI 2026 · 2 citations
- Words to Describe What I'm Feeling: Exploring the Potential of AI Agents for High Subjectivity Decisions in Advance Care PlanningKellie Yu Hui Sim, Pin Sym Foong, Chenyu Zhao, Melanie Yi Ning Quek et al.CHI 2026 · 2 citations
- Improving Collaborative Management of Multiple Mental and Physical Health Conditions: A Qualitative Inquiry into Designing Technology-Enabled Services for Eliciting Patients' ValuesWilliam Wibowo Liem, Emily G. Lattie, Bayley J. Taple, Caitlin A. Stamatis et al.CSCW 2024 · 5 citations
